I need some blog writing therapy. Today was a terrible, horrible, no good, very bad day. I was the hardest day I’ve ever had being a mommy. Balancing a newborn’s needs with a toddler going through medical stuff is just plain hard.
In case you didn’t know, Amelia had to have a CT scan today due to the continual swelling she’s experiencing with her face. The swelling until yesterday was only on her right side, now it seems we’re having issues on the left too.
We arrived at Texas Children’s Hospital today at 12:00 as planned. We checked her in and she go a nice pretty bracelet to wear. We were taken to a holding area…it was a zoo. We saw so many people come in an out during our time there, countless babies crying and there was zero rest for any of us. Every time the baby fell asleep another baby could shriek and wake her up.
They started an IV shortly after we arrived because Amelia was going to have contrast during her CT. We asked about sedation and were told that they wanted to try it without first. My first thought was REALLY, ARE YOU FREAKING KIDDING ME? I know my child and I know there’s no way on God’s green earth that she was going to allow them to VELCRO her to table, make a lot of noise and ask her to stay still for 5-10 minutes. I’m 30 years old and I wouldn’t want to do that for 5 seconds much less 5 minutes. How in the world would they expect her to do it?
So, about 15 minutes after we arrived they took her back. I was thinking heck yes, they’re fast here. About 3 minutes after that they were back in the room, no dice. Amelia screamed like a banshee, flailed and did exactly what I thought she would do, she acted like a 2 year old. So, we were going to have to sedate her after all. Mommy knows best.
We sat, we waited. I nursed the baby 8,000 times. We played peek-a-boo in the curtains. We played hide and see in a 10×10 area. We read every book they had. We played every game on both of our phones. We watched videos. We sat there for 3 hours waiting and wondering when they would come and get us. They pretty much forgot about us. Dustin went to the front desk and asked for our nurse. Someone came in a few minutes later and before we knew it they were sedating her.
It took 2.5 times the normal amount to sedate my super duper strong-willed kiddo. That part was awful. Watching my child fight it, mumble, moan, cry out for me and then finally give in made me cry. I hate this, I hate that we’re having to do it and I pray that we never have to again. I thought the worst was surely over. I was wrong.
They took her back and the test took maybe 5 minutes to complete and she was brought back in the holding area.
We finally started stirring Amelia about and hour after her CT. She was out of it so it took some time. We got her to drink (more like spill juice on herself and splash some in her mouth) and we got her alert enough that the nurse would take her IV out and let us go home.
We were ok until we took that juice box away. WW3 broke out and lasted for over an hour, the amount of time it took us to get most of the way home in rush hour traffic and rain. Amelia screamed, kicked and fought us with every bit of her strength. It’s like the worst temper tantrum you’ve ever imagined times a thousand. It was awful. I don’t ever want to see her like that again. On top of it Amelia’s antics woke the baby up so we had both of them screaming together for a bit.
She went from screaming one minute to laughing for a few seconds back to screaming. She was nuts, she was not our child. We couldn’t comprehend much that she said and didn’t know how to help her.
Just as we turned off of the highway it was like someone flipped a switch. All of a sudden we could understand what she was saying, she was no longer crying, she was normal again…mostly.
Amelia still couldn’t walk. It was like she was really drunk all evening. She fell twice, once into the end table and once into her bookcase in the hallway. She bonked her head both times and of course cried and cried. She got some extra snuggles and songs this evening at bed time and we expect that she’ll be back to 100% after getting a good night’s sleep.
All in all it was a pretty yucky day. We’re praying for results soon, for a simple diagnosis, for an easy fix. We’ll see. For now we’ll pray and hope that our little girl is as perfect as we think she is.